Questionnaires within the head-neck area and kit for odor rehabilitation

In addition to patient surveys, it is important to include and document the patient's own experience (Patient Reported Outcome and Experience Measures). Survey forms are the most common way of assessing PROM and PREM as it is time efficient and ensures that the questions are asked in the same way every time, which facilitates comparison within and between groups.
In the clinic, this type of form can be used to estimate symptoms or treatment effect. They can help patients explain their problems with impaired function and quality of life and aid clinics to identify what the patient experience as their greatest difficulty. You are welcome to use these instruments after registering and specifying the context in which you will use the survey (s). This website also offers instructions on odor rehabilitation after laryngectomy.

Questionnaires

SECEL – Swedish Self Evaluation of Communication Experiences after Laryngeal problems

In addition to clinical and voice-related studies for patients with voice problems, it is important to include and document the patient’s own communication experience. S-SECEL is a questionnaire for measuring communication ability for patients with voice, speech and communication problems and can be used for patients who have undergone treatment for laryngeal cancer as well as for patients with benign voice problems. The Swedish version shows good validity and test-retest reliability and is sensitive to measuring changes over time. Minimum clinically important difference (MCID) and cut-off scores for the S-SECEL have been identified and may be used in clinical practice

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NAIM – Nasal Airflow Inducing Maneuver

The NAIM technique aims to restore the sense of smell by creating an orthonasal airflow through the nose by establishing a negative pressure in the oral cavity and oropharynx while keeping the lips closed, the soft palate relaxed and with simultaneous lowering of the base of tongue and floor of mouth (as a polite yawn). The technique is easy to learn and to teach. With a water manometer the patient gets real-time visual feedback if the movement is performed correctly during practice. Odor rehabilitation can be performed in parallel with voice rehabilitation (during regular speech therapist visits) and requires no

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GTQ – Gothenburg Trismus Questionnaire

Trismus (restricted mouth opening) is a symptom that leads to difficulties with chewing, swallowing, pain and poor oral hygiene and can have a negative impact on health-related quality of life, especially with regards to social function and social contact. To evaluate trismus and its treatment outcomes, a multidimensional, self-administered, trismus-specific questionnaire has been created: Gothenburg Trismus Questionnaire (GTQ 2). GTQ 2 can be used for all patients with restricted mouth opening and has in statistical testing shown good psychometric properties, i.e. high validity and reliability. For further information regarding the development and validation of the GTQ, please see: Translation and

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Research group

Professor Caterina Finizia and staff

Contact person regarding the questionnaires

Lisa Tuomi, PhD, Speech Language Pathologist ENT Sahlgrenska University Hospital 413 45 Gothenburg.